In this important discussion with rare epilepsy moms who made the decision to donate their children’s brain tissue upon passing, we discuss a number of critical elements about this deeply personal and difficult decision including:

1. Cómo y por qué tomaron la decisión de donar
2. Cómo gestionar a los familiares que no entienden o no están de acuerdo
3. La logística de la donación
4. Cómo impacta la donación en el funeral/celebración de la vida
And more

Our guests are Shelley Oldham, Angie Weaver and Penny Howard.

This webinar is hosted in partnership with FamilieSCN2A Foundation y Hope4Harper.

You can also learn more about how brain donation plays a crucial role in advancing scientific research/breakthroughs and understanding neurological conditions in this previous webinar with families and professionals.

Find more additional resources in our Centro de Recursos

Para obtener más recursos del DEE, consulte nuestro centro de Recursos