In this important discussion with rare epilepsy moms who made the decision to donate their children’s brain tissue upon passing, we discuss a number of critical elements about this deeply personal and difficult decision including:
1. How and why they made the decision to donate
2. How to manage family members who don’t understand or agree
3. The logistics of donation
4. How donation impacts the funeral/celebration of life
And more
Our guests are Shelley Oldham, Angie Weaver and Penny Howard.
This webinar is hosted in partnership with FamilieSCN2A Foundation et Hope4Harper.
You can also learn more about how brain donation plays a crucial role in advancing scientific research/breakthroughs and understanding neurological conditions in this previous webinar with families and professionals.
Find more additional resources in our Centre de ressources
Pour plus de ressources DEE, consultez notre centre de ressources
Déclaration de confidentialité
Nous reconnaissons que votre vie privée est importante. Notre déclaration de confidentialité décrit les types d'informations personnelles que nous recevons et collectons lorsque vous utilisez ce site Web, ainsi que certaines des mesures que nous prenons pour protéger les informations. Veuillez en lire davantage ici.