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Lightening the Load: How AI Can Support Families Managing Complex Care
Caring for a medically complex child means juggling endless details, from therapy notes and appointments to insurance paperwork and care coordination. Join Jennifer Bloom, parent, caregiver, and advocate, for a…
Parent Perspectives: Insights into Medical Decision-Making
Making major decisions about interventions such as feeding tubes or tracheostomies is one of the greatest responsibilities caregivers face for their child, weighing not only risks and benefits but also the goals of care for their child. Join a panel of experienced parents as they share valuable insights into their decision-making journeys. Discover the factors…
What’s at Stake for Medicaid—and How Parents Can Take Action
Proposed changes to Medicaid could have serious consequences for families of children with medical complexity and disabilities. Join us for a timely and important conversation about what’s being proposed, what it could mean for your child’s care, and—most importantly—how you can make your voice heard. Hear from two seasoned advocates:Laura Weidner, Chief Advocacy and Government…