Latest Past Events

Epilepsy Surgery and Rare Genetic Disorders

Come hear about when and why you should consider epilepsy surgery for your child with a DEE. Our guests will be: Dr. Ahmad Marashly, Medical Director, Pediatric Epilepsy Surgery Program, Johns Hopkins HospitalandMonika Jones, JD Founder and Executive Director of the Pediatric Epilepsy Surgery Alliance In this webinar, you will:- Get an intro to epilepsy…

Keto and the DEEs

Do you have questions about the keto diet? Come to find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and Pediatric Epileptologist Dr. Chalongchai Phitsanuwong and registered dietician Stephanie Schimpf from the University of Chicago!

Oral Health and Hygiene for Those Who Do Not Eat by Mouth

Does your loved one with a DEE/rare epilepsy struggle with dental issues? Swollen gumsExcessive oral secretionsTooth grinding Join us to hear from Dental Hygienist who specializes in working with medically complex children, researcher and KCNT1 rare epilepsy mom, Shannon Daly Weir as well as Pediatric Dentist Dr. Hans Reinemer from the University of Utah. This…