Clinical Trials

clinical trial

Webinars

Webinars
ruler2

RECORDING – Inchstone Outcomes Workshop 2

ruler

RECORDING – Inchstone Outcomes Workshop 1

Researching

The ABCs of Clinical Trials Part 2 – What Every Rare Disease Family Should Know

Tools And Resources

online tools

ClinicalTrials.gov - Find out if there are or have been any Clinical Trials for your disorder or related co-morbidities

NCATSToolkit for Patient-focused Therapeutics Development

RaDaR - Rare Diseases Registry Program

FDA Patient Affairs Staff

Articles

Articles

Will add relevant materials as available.

If you have a suggested article, please contact us.

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