Ensaios clínicos

clinical trial

Webinars

Webinars
Clinical Trials (1)

Aumento do acceso aos ensaios clínicos e aos novos tratamentos nos DEE

Researching

O ABC dos ensaios clínicos Parte 2: o que debe saber toda familia de enfermidades raras

gentic modifiers

O ABC dos ensaios clínicos, parte 1: conceptos básicos

Presentacións

Presentation Materials

Anne Pariser, MD - An Introduction To Preclinical Therapeutics Development

Adam L. Hartman, MD, FAAP, FAAN, FANA, FAES - Clinical Trials 101

Steven L. Roberds, PhD - The Power of Community: Clinical Trial Experience in Tuberous Sclerosis Complex

What Can Patients Do?  A Lot!

Ferramentas E Recursos

online tools

ClinicalTrials.gov - Find out if there are or have been any Clinical Trials for your disorder or related co-morbidities

NCATSToolkit for Patient-focused Therapeutics Development

RaDaR - Rare Diseases Registry Program

FDA Patient Affairs Staff

Artigos

Articles

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