Testes clínicos

clinical trial

Seminários on-line

Webinars
Clinical Trials (1)

Aumentando o acesso a ensaios clínicos e novos tratamentos nos DEEs

Researching

The ABCs of Clinical Trials Part 2 – What Every Rare Disease Family Should Know

gentic modifiers

The ABC’s of Clinical Trials Part 1 – The Basics

Apresentações

Presentation Materials

Anne Pariser, MD - An Introduction To Preclinical Therapeutics Development

Adam L. Hartman, MD, FAAP, FAAN, FANA, FAES - Clinical Trials 101

Steven L. Roberds, PhD - The Power of Community: Clinical Trial Experience in Tuberous Sclerosis Complex

What Can Patients Do?  A Lot!

Ferramentas e recursos

online tools

ClinicalTrials.gov - Find out if there are or have been any Clinical Trials for your disorder or related co-morbidities

NCATSToolkit for Patient-focused Therapeutics Development

RaDaR - Rare Diseases Registry Program

FDA Patient Affairs Staff

Artigos

Articles

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