Ceribandinên Klînîkî

clinical trial

Webinars

Webinars
Clinical Trials (1)

Zêdekirina gihîştina ceribandinên klînîkî û dermankirinên nû li seranserê DEEs

Researching

The ABCs of Clinical Trials Part 2 – What Every Rare Disease Family Should Know

gentic modifiers

The ABC’s of Clinical Trials Part 1 – The Basics

Pêşkêşiyên

Presentation Materials

Anne Pariser, MD - An Introduction To Preclinical Therapeutics Development

Adam L. Hartman, MD, FAAP, FAAN, FANA, FAES - Clinical Trials 101

Steven L. Roberds, PhD - The Power of Community: Clinical Trial Experience in Tuberous Sclerosis Complex

What Can Patients Do?  A Lot!

Amûr Û Çavkanî

online tools

ClinicalTrials.gov - Find out if there are or have been any Clinical Trials for your disorder or related co-morbidities

NCATSToolkit for Patient-focused Therapeutics Development

RaDaR - Rare Diseases Registry Program

FDA Patient Affairs Staff

Gotarên

Articles

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