Webinars & Other Content
- DEEP Submits Formal Comments Opposing OMB Proposal That Threatens Progress in Rare Epilepsy Research
- FDA Guidance To Accelerate Individualized Therapies for Ultra-rare Diseases
- Understanding ASOs & Informed Consent
- Seizure Clusters Vs. Status: What Every Caregiver Needs To Know
- Dignity in Design: Why Universal Changing Stations Cannot Wait
- Navigating Respiratory Care for Medically Complex Children
- Understanding Quality of Life in Developmental and Epileptic Encephalopathy
- Caring Together: Families, Providers, and the Role of Palliative Support
- Navigating GI Interventions: From Testing to Treatment
- Lightening the Load: How AI Can Support Families Managing Complex Care
- Parent Perspectives Insights Into Medical Decision-making
- Stronger Together: Reflections from the FamilieSCN2A Conference
- Strong Bipartisan Rejection by Senate Appropriations Subcommittee to Deep Cuts to NIH and Medical Research; Directs Focus on Pediatric Epilepsies
- A Devastating New Roadblock to Rare Epilepsy Care and Cures
- What’s At Stake for Medicaid and How To Take Action
- Real Moms, Real Stories: Advocacy That Inspires
- Relationships 101: Marriage & Parenting a Medically Complex Child
- The Life-Saving Nature of Epilepsy Surgery
- Growing Together: Navigating the Life Stage Checklist for Families
- DEE Caregivers Share Urgent Needs for Accelerated Treatment and Improved Measurement for DEEs
- Why do I love DEE-P Connections?
- ALL ABOUT The Connected Parent
- Our CVI Journey
- How to Get Grants and Funding for Medical Expenses
- Sleep & DEEs
- Are we giving sleep enough attention?
- Traveling with Your Medically Complex Child
- Zêdekirina gihîştina ceribandinên klînîkî û dermankirinên nû li seranserê DEEs
- Rêvebirina Rêwîtiyê bi Zaroka xweya Kompleks re
- Bexşîna Mejî: Çi bihesibîne, çawa dixebite û çawa dikare bibe alîkar
- Cortical Visual Impairment (CVI) and the Developmental and Epileptic Encephalopathies (DEEs)
- Pêşîlêgirtina şewitandina lênêrînê: Atolyeyek li ser avakirina berxwedanê
- Çima EEG girîng e û ew çi dikarin eşkere bikin
- Nenaskirî
- IEP Crash Kurs
- Tenduristiya Bone ji bo DEEs
- Lênêrîna Kêm û Zehmetiyên Bi Xwe-Lênêrînê - Nîqaşek DEE-P
- Bernameyên ji bo Alîkariya Lênêrîna Zarokên Me yên Tevlihev - Nexweşxaneyê û Derveyî
- Parastina Gihîştina Kêmtir ji Dermankirinên Off-Label re
- Fêr bibin Meriv Çawa Daneyên Xwe Bi CRID-ê re Zêdetir Bikin
- Pirsgirêkên GI û Nexweşiyên Neuropêşveçûn
- Serpêhatiya Epîlepsiyê û Epîlepsiyên Genetîkî yên Nadir
- Xwarina Ketogenic û DEEs
- Oral Health and Hygiene for Those Who Do Not Eat by Mouth
- Vegere Dibistana SAP
- Em li ser derzî û enfeksiyonên COVID-19 di kesên ku bi epîlepsiyên kêm kêm in de fêr dibin?
- Planificación SAP de verano: lo que necesita saber y hacer para estar preparado
- Plansaziya Çalakiya Desteserkirina Havînê - Ya ku hûn hewce ne ku zanibin û bikin ku hûn amade bibin
- Çima Bexşîna Tîsa Mejî Girîng e
- Tedawiya Kêmbûna Mezinbûnê - Her tiştê ku hûn dixwazin û hewce ne ku zanibin
- Vebijarkên Teknolojiya Bilind Ji bo Têkilî û Gihîştina Alternatîf di hundurê Malê de
- Pergalên Ragihandinê yên Kêm-Tech/No-Tech Ji bo Zarokên bi Pêdiviyên Têkilî yên Kompleksî
- Vekirina sirên Ataxia, Hypertonicity, Athetosis û Tone Mixed
- Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays
- An Overview of Hypotonia and How it Impacts Overall Functioning and Development
- Piştgirî û Lênêrînê ya Hospice Zarokan
- TÊKIRIN - Tedbîrên Encama Pêşveçûn Ji bo Nifûsên Zehf Bibandor
- QEYDKIRINA - NIRXANDINA REWŞ Û DERBETAN
- HÛN Dikarin çi bikin ji bo saxkirina epîlepsiyê?
- Teknolojiya Desteserkirinê - Teknolojiyên Nûjen Ji bo Pêşbînîkirin û Tespîtkirina Desthilatan
- Seizure Technology – Tracking
- Seizure Technology – Monitoring
- How Effective is Your Epilepsy Care?
- Sendroma Epîlepsiya Nadir: ESES, CSWS, EECSWS?
- Be Prepared – Guiding You Through the Journey of Planning for a Secure Future for your DEE Child
- Seizure Action Plan Awareness
- Di Epîlepsiyê de Mirineke Neçaverêkirî ya Nişkê (SUDEP) Beş 3 - Perspektîfên Malbatê
- Di Epîlepsiyê de Mirineke Ji Nişka ve Neçapkirî (SUDEP) Beş 2: Em dikarin çi bikin?
- Stimulatorên Nerve- Ma VNS, DBS, an RNS dikare Alîkarî bike?
- The ABCs of Clinical Trials Part 2 – What Every Rare Disease Family Should Know
- The ABC’s of Clinical Trials Part 1 – The Basics
- Di Epîlepsiyê de Mirineke Neçaverêkirî (SUDEP) Beş 1: Em çi dizanin?
- Curing the Epilepsies Part 2
- Curing the Epilepsies Part 1
- Rescue Medications for DEEs Series – Part 4
- Nexweşiya Xweser / Dysautonomia
- Ji bo Malbatên DEE Teletendurustiya me xilas dike
- Rescue Medications for DEEs Series – Part 3
- Rescue Medications for DEEs Series – Part 2
- COVID-19 Vaccines and Epilepsy – Focus on DEE Population
- Rescue Medications for DEEs Series – Part 1
- Promoting Healthy Relationships between Those with Severe Epilepsy and Their Siblings
- Di Epilepsiya Zarokatiya Rare de Başkirina Kalîteya Lênihêrînê
- Strategies for Learning at Home with your DEE Child and Engaging the Whole Family
- Navigating Safety for Pediatric Epilepsy Patients in COVID-19 Environment
- COVID -19 Through the Lens of Grief
- Genetics of DEEs
- Parastina Zarokên Kompleksa Bijîjkî û/an Bêparebûn bi Epilepsî ji COVID-19
- IEPs ji bo Zarokên bi DEE-yên giran
- Nêrîna giştî ya DEE û DEE-P
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