Previous Webinars

Blended Diets-2

Blended Diets 101: Benefits, Basics & Getting Started

ASO Webinar-3

Understanding ASOs & Informed Consent

Seizure Clusters vs Status-2

Seizure Clusters Vs. Status: What Every Caregiver Needs To Know

Pulm  Decision Making

Navigating Respiratory Care for Medically Complex Children

Palliative Care

Caring Together: Families, Providers, and the Role of Palliative Support

GI Decision Making

Navigating GI Interventions: From Testing to Treatment

Lightening the Load

Lightening the Load: How AI Can Support Families Managing Complex Care

CP Paren Perspectives

Parent Perspectives Insights Into Medical Decision-making

Copy of What’s at stake for Medicaid

What’s At Stake for Medicaid and How To Take Action

Real Moms, Real Stories

Real Moms, Real Stories: Advocacy That Inspires

Relationships

Relationships 101: Marriage & Parenting a Medically Complex Child

Epilepsy Surgery, Research Updates and All You Need to Know-2

The Life-Saving Nature of Epilepsy Surgery

Transition Checklist (YouTube Thumbnail)

Growing Together: Navigating the Life Stage Checklist for Families

TheConnectParent

ALL ABOUT The Connected Parent

Untitled design-10

How to Get Grants and Funding for Medical Expenses

sleep-dees

Sleep & DEEs

traveling-post-image

Traveling with Your Medically Complex Child

Clinical Trials (1)

Zêdekirina gihîştina ceribandinên klînîkî û dermankirinên nû li seranserê DEEs

NJ

Rêvebirina Rêwîtiyê bi Zaroka xweya Kompleks re

heart-2356621_1280

Bexşîna Mejî: Çi bihesibîne, çawa dixebite û çawa dikare bibe alîkar

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Cortical Visual Impairment (CVI) and the Developmental and Epileptic Encephalopathies (DEEs)

resilience

Pêşîlêgirtina şewitandina lênêrînê: Atolyeyek li ser avakirina berxwedanê

eeg-pic

Çima EEG girîng e û ew çi dikarin eşkere bikin

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Nenaskirî

back-to-school-5514983_1280-1

IEP Crash Kurs

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Tenduristiya Bone ji bo DEEs

Caregiver DEE-P Discussion - Help (1)

Lênêrîna Kêm û Zehmetiyên Bi Xwe-Lênêrînê - Nîqaşek DEE-P

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Bernameyên ji bo Alîkariya Lênêrîna Zarokên Me yên Tevlihev - Nexweşxaneyê û Derveyî

med pic

Parastina Gihîştina Kêmtir ji Dermankirinên Off-Label re

crid

Fêr bibin Meriv Çawa Daneyên Xwe Bi CRID-ê re Zêdetir Bikin

Peds-GI

Pirsgirêkên GI û Nexweşiyên Neuropêşveçûn

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Serpêhatiya Epîlepsiyê û Epîlepsiyên Genetîkî yên Nadir

Untitled-design-7

Xwarina Ketogenic û DEEs

Dental-Health Small

Oral Health and Hygiene for Those Who Do Not Eat by Mouth

Untitled design (4)

Vegere Dibistana SAP

outbreak-coronavirus-world-1024x506px

Em li ser derzî û enfeksiyonên COVID-19 di kesên ku bi epîlepsiyên kêm kêm in de fêr dibin?

spanish-summer-seizure-1

Planificación SAP de verano: lo que necesita saber y hacer para estar preparado

summer-seizure-pic-1

Plansaziya Çalakiya Desteserkirina Havînê - Ya ku hûn hewce ne ku zanibin û bikin ku hûn amade bibin

brain

Çima Bexşîna Tîsa Mejî Girîng e

grow

Tedawiya Kêmbûna Mezinbûnê - Her tiştê ku hûn dixwazin û hewce ne ku zanibin

tobii

Vebijarkên Teknolojiya Bilind Ji bo Têkilî û Gihîştina Alternatîf di hundurê Malê de

low-tech-communication-cvi

Pergalên Ragihandinê yên Kêm-Tech/No-Tech Ji bo Zarokên bi Pêdiviyên Têkilî yên Kompleksî

ataxia-event

Vekirina sirên Ataxia, Hypertonicity, Athetosis û Tone Mixed

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Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays

adaptive-equip-webinar

An Overview of Hypotonia and How it Impacts Overall Functioning and Development

Hands-Circle

Piştgirî û Lênêrînê ya Hospice Zarokan

ruler2

TÊKIRIN - Tedbîrên Encama Pêşveçûn Ji bo Nifûsên Zehf Bibandor

ruler

QEYDKIRINA - NIRXANDINA REWŞ Û DERBETAN

CTE 2

HÛN Dikarin çi bikin ji bo saxkirina epîlepsiyê?

unsplash-image-iYkqHp5cGQ4 monitor

Teknolojiya Desteserkirinê - Teknolojiyên Nûjen Ji bo Pêşbînîkirin û Tespîtkirina Desthilatan

tech

Seizure Technology – Tracking

unsplash-image-iYkqHp5cGQ4 monitor

Seizure Technology – Monitoring

participating in research

How Effective is Your Epilepsy Care?

eses eeg spike wave

Sendroma Epîlepsiya Nadir: ESES, CSWS, EECSWS?

unsplash-image-FTrDy_oxjmA innov

Be Prepared – Guiding You Through the Journey of Planning for a Secure Future for your DEE Child

SAPC-Logo

Seizure Action Plan Awareness

ef sudep inst

Di Epîlepsiyê de Mirineke Neçaverêkirî ya Nişkê (SUDEP) Beş 3 - Perspektîfên Malbatê

Developmental And Epileptic Encephalopathies

Di Epîlepsiyê de Mirineke Ji Nişka ve Neçapkirî (SUDEP) Beş 2: Em dikarin çi bikin?

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Stimulatorên Nerve- Ma VNS, DBS, an RNS dikare Alîkarî bike?

Researching

The ABCs of Clinical Trials Part 2 – What Every Rare Disease Family Should Know

gentic modifiers

The ABC’s of Clinical Trials Part 1 – The Basics

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Di Epîlepsiyê de Mirineke Neçaverêkirî (SUDEP) Beş 1: Em çi dizanin?

CTE 2

Curing the Epilepsies Part 2

curing the epilepsies - NIH

Curing the Epilepsies Part 1

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Rescue Medications for DEEs Series – Part 4

autonomic

Nexweşiya Xweser / Dysautonomia

medicine via technology

Ji bo Malbatên DEE Teletendurustiya me xilas dike

mom

Rescue Medications for DEEs Series – Part 3

rescue

Rescue Medications for DEEs Series – Part 2

outbreak-coronavirus-world-1024x506px

COVID-19 Vaccines and Epilepsy – Focus on DEE Population

emergency

Rescue Medications for DEEs Series – Part 1

Sibs

Promoting Healthy Relationships between Those with Severe Epilepsy and Their Siblings

epilepsyQI

Di Epilepsiya Zarokatiya Rare de Başkirina Kalîteya Lênihêrînê

growth

Strategies for Learning at Home with your DEE Child and Engaging the Whole Family

outbreak-coronavirus-world-1024x506px

Navigating Safety for Pediatric Epilepsy Patients in COVID-19 Environment

greif

COVID -19 Through the Lens of Grief

genetics

Genetics of DEEs

covid19

Parastina Zarokên Kompleksa Bijîjkî û/an Bêparebûn bi Epilepsî ji COVID-19

preparing and planning

IEPs ji bo Zarokên bi DEE-yên giran

SCN8A Information Resource Center Logo

Nêrîna giştî ya DEE û DEE-P