Webinars anteriores

Blended Diets-2

Blended Diets 101: Benefits, Basics & Getting Started

ASO Webinar-3

Understanding ASOs & Informed Consent

Seizure Clusters vs Status-2

Seizure Clusters Vs. Status: What Every Caregiver Needs To Know

Pulm Decision Making

Navigating Respiratory Care for Medically Complex Children

Palliative Care

Caring Together: Families, Providers, and the Role of Palliative Support

GI Decision Making

Navigating GI Interventions: From Testing to Treatment

Lightening the Load

Lightening the Load: How AI Can Support Families Managing Complex Care

CP Paren Perspectives

Parent Perspectives Insights Into Medical Decision-making

Copy of What’s at stake for Medicaid

What’s At Stake for Medicaid and How To Take Action

Real Moms, Real Stories

Real Moms, Real Stories: Advocacy That Inspires

Relationships

Relationships 101: Marriage & Parenting a Medically Complex Child

Epilepsy Surgery, Research Updates and All You Need to Know-2

The Life-Saving Nature of Epilepsy Surgery

Transition Checklist (YouTube Thumbnail)

Growing Together: Navigating the Life Stage Checklist for Families

TheConnectParent

ALL ABOUT The Connected Parent

Untitled design-10

How to Get Grants and Funding for Medical Expenses

sleep-dees

Sleep & DEEs

traveling-post-image

Traveling with Your Medically Complex Child

Clinical Trials (1)

Aumento do acceso aos ensaios clínicos e aos novos tratamentos nos DEE

NJ

Xestionar a viaxe co seu fillo complexo

heart-2356621_1280

Doazón de cerebro: o que hai que considerar, como funciona e como pode axudar

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Deficiencia visual cortical (CVI) e encefalopatías do desenvolvemento e epilépticas (DEE)

resilience

Prevención do burnout do coidador: un obradoiro sobre a construción da resiliencia

eeg-pic

Por que importan os EEG e que poden revelar

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Sen diagnosticar

back-to-school-5514983_1280-1

Curso intensivo IEP

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Saúde ósea para os DEE

Caregiver DEE-P Discussion - Help (1)

Coidados raros e desafíos co coidado persoal: unha discusión DEE-P

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Programas para axudar a coidar dos nosos nenos complexos: pacientes hospitalizados e ambulatorios

med pic

Protexer o acceso raro a tratamentos fóra de etiqueta

crid

Aprende a maximizar os teus datos co CRID

Peds-GI

Problemas gastrointestinais e trastornos do neurodesenvolvemento

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Cirurxía da epilepsia e epilepsias xenéticas raras

Untitled-design-7

Dieta Cetoxénica e os DEE

Dental-Health Small

Oral Health and Hygiene for Those Who Do Not Eat by Mouth

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Regreso á escola SAP

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Que estamos aprendendo sobre as vacinas e infeccións contra a COVID-19 en persoas con epilepsias raras?

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Planificación SAP de verán: o que necesita saber e facer para estar preparado

summer-seizure-pic-1

Planificación de accións contra as convulsións de verán: o que necesitas saber e facer para estar preparado

brain

Why Brain Tissue Donation Matters

grow

Terapia de atenuación do crecemento: todo o que queres e necesitas saber

tobii

Opcións de alta tecnoloxía para a comunicación alternativa e o acceso no fogar

low-tech-communication-cvi

Sistemas de comunicación de baixa tecnoloxía/sen tecnoloxía para nenos con necesidades de comunicación complexas

ataxia-event

Desvelando os misterios da ataxia, a hipertonicidade, a atetose e o ton mixto

2014-08-31 16.36.40

Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays

adaptive-equip-webinar

An Overview of Hypotonia and How it Impacts Overall Functioning and Development

Hands-Circle

Pediatric Hospice Support & Care

ruler2

REXISTRO - Medidas anticipadas de resultados para poboacións gravemente afectadas

ruler

GRAVACIÓN – VALORACIÓN DO ESTADO E OPORTUNIDADES

CTE 2

Que podes facer TI para axudar a curar as epilepsias?

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Tecnoloxía de convulsións: tecnoloxías emerxentes para prever e detectar convulsións

tech

Seizure Technology – Tracking

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Seizure Technology – Monitoring

participating in research

How Effective is Your Epilepsy Care?

eses eeg spike wave

Síndrome de epilepsia rara: ESES, CSWS, EECSWS?

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Be Prepared – Guiding You Through the Journey of Planning for a Secure Future for your DEE Child

SAPC-Logo

Seizure Action Plan Awareness

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Morte súbita e inesperada na epilepsia (SUDEP) Parte 3 - Perspectivas familiares

Developmental And Epileptic Encephalopathies

Morte súbita e inesperada na epilepsia (SUDEP) Parte 2: que podemos facer?

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Estimuladores nerviosos: un VNS, DBS ou RNS podería axudar?

Researching

O ABC dos ensaios clínicos Parte 2: o que debe saber toda familia de enfermidades raras

gentic modifiers

O ABC dos ensaios clínicos, parte 1: conceptos básicos

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Morte súbita e inesperada na epilepsia (SUDEP) Parte 1: Que sabemos?

CTE 2

Curing the Epilepsies Part 2

curing the epilepsies - NIH

Curing the Epilepsies Part 1

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Rescue Medications for DEEs Series – Part 4

autonomic

Autonomic Dysfunction/Dysautonomia

medicine via technology

Saving Our Telehealth for DEE Families

mom

Rescue Medications for DEEs Series – Part 3

rescue

Rescue Medications for DEEs Series – Part 2

outbreak-coronavirus-world-1024x506px

Vacinas e epilepsia contra a COVID-19: foco na poboación DEE

emergency

Rescue Medications for DEEs Series – Part 1

Sibs

Promoting Healthy Relationships between Those with Severe Epilepsy and Their Siblings

epilepsyQI

Mellora da calidade da atención na epilepsia infantil rara

growth

Strategies for Learning at Home with your DEE Child and Engaging the Whole Family

outbreak-coronavirus-world-1024x506px

Navegando pola seguridade dos pacientes con epilepsia pediátrica no entorno COVID-19

greif

COVID -19 Through the Lens of Grief

genetics

Xenética dos DEE

covid19

Protexer os nenos con epilepsia médicamente complexos e/ou inmunodeprimidos da COVID-19

preparing and planning

IEPs for Children with Severe DEEs

SCN8A Information Resource Center Logo

Visión xeral dos DEE e DEE-P