Previous Webinars

Blended Diets-2

Blended Diets 101: Benefits, Basics & Getting Started

ASO Webinar-3

Understanding ASOs & Informed Consent

Seizure Clusters vs Status-2

Seizure Clusters Vs. Status: What Every Caregiver Needs To Know

Pulm Decision Making

Navigating Respiratory Care for Medically Complex Children

Palliative Care

Caring Together: Families, Providers, and the Role of Palliative Support

GI Decision Making

Navigating GI Interventions: From Testing to Treatment

Lightening the Load

Lightening the Load: How AI Can Support Families Managing Complex Care

CP Paren Perspectives

Parent Perspectives Insights Into Medical Decision-making

Copy of What’s at stake for Medicaid

What’s At Stake for Medicaid and How To Take Action

Real Moms, Real Stories

Real Moms, Real Stories: Advocacy That Inspires

Relationships

Relationships 101: Marriage & Parenting a Medically Complex Child

Epilepsy Surgery, Research Updates and All You Need to Know-2

The Life-Saving Nature of Epilepsy Surgery

Transition Checklist (YouTube Thumbnail)

Growing Together: Navigating the Life Stage Checklist for Families

TheConnectParent

ALL ABOUT The Connected Parent

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How to Get Grants and Funding for Medical Expenses

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Sleep & DEEs

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Traveling with Your Medically Complex Child

Clinical Trials (1)

Nambah Akses menyang Uji Coba Klinis lan Perawatan Anyar ing DEE

NJ

Ngatur Perjalanan karo Anak Komplek

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Sumbangan Otak: Apa sing kudu ditimbang, cara kerjane lan kepiye bisa mbantu

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Cortical Visual Impairment (CVI) lan Developmental and Epileptic Encephalopathies (DEEs)

resilience

Nyegah Caregiver Burnout: A Workshop on Building Resilience

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Napa EEG Penting lan Apa Sing Bisa Dicethakaké

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Ora didiagnosis

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Kursus Crash IEP

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Kesehatan Tulang kanggo DEEs

Caregiver DEE-P Discussion - Help (1)

Perawatan Langka & Tantangan karo Self-Care - Diskusi DEE-P

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Program kanggo Mbantu Ngrawat Anak Komplek Kita - Rawat Inap lan Rawat Jalan

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Nglindhungi Akses Langka kanggo Perawatan Off-Label

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Sinau Cara Ngoptimalake Data Kanthi CRID

Peds-GI

Masalah GI lan Gangguan Neurodevelopmental

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Bedah Epilepsi lan Epilepsi Genetik Langka

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Diet Ketogenik lan DEEs

Dental-Health Small

Kesehatan Lisan lan Kebersihan Kanggo Sing Ora Mangan Mbukak

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Bali menyang Sekolah SAP

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Apa sing kita sinau babagan vaksin lan infeksi COVID-19 ing wong sing nandhang epilepsi langka?

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Planificación SAP de verano: lo que necesita saber y hacer for estar preparado

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Perencanaan Tindakan Penyitaan Musim Panas - Apa sampeyan kudu ngerti lan nindakake supaya bisa disiapake

brain

Napa Sumbangan Jaringan Otak Penting

grow

Terapi Atenuasi Pertumbuhan - Kabeh Sampeyan Kepengin lan Perlu Dingerteni

tobii

Pilihan Teknologi Tinggi kanggo Komunikasi Alternatif lan Akses ing Omah

low-tech-communication-cvi

Sistem Komunikasi Low-Tech/No-Tech kanggo Bocah-bocah karo Kebutuhan Komunikasi Komplek

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Mbukak Misteri Ataxia, Hipertonisitas, Athetosis lan Nada Campuran

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Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays

adaptive-equip-webinar

An Overview of Hypotonia and How it Impacts Overall Functioning and Development

Hands-Circle

Dhukungan & Perawatan Hospice Anak

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RAKAMAN - Langkah-langkah Kasil Maju kanggo Populasi sing Dipengaruhi Parah

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RECORDING - NILAI STATUS LAN KESEMPATAN

CTE 2

Apa sing bisa ditindakake kanggo ngobati epilepsi?

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Teknologi Seizure - Teknologi Muncul kanggo Prediksi lan Ndeteksi Kejang

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Seizure Technology – Tracking

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Seizure Technology – Monitoring

participating in research

How Effective is Your Epilepsy Care?

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Rare Epilepsy Syndrome: ESES, CSWS, EECSWS?

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Be Prepared – Guiding You Through the Journey of Planning for a Secure Future for your DEE Child

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Seizure Action Plan Awareness

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Sudden Unexpected Death in Epilepsy (SUDEP) Part 3 – Family Perspectives

Developmental And Epileptic Encephalopathies

Sudden Unexpected Death in Epilepsy (SUDEP) Part 2: What can we do?

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Nerve Stimulators- Could a VNS, DBS, or RNS Help?

Researching

ABC saka Uji Coba Klinis Part 2 - Apa Saben Kulawarga Penyakit Langka Kudu Ngerti

gentic modifiers

Uji Coba Klinis ABC Part 1 – Dasar

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Sudden Unexpected Death in Epilepsy (SUDEP) Part 1: What do we know?

CTE 2

Curing the Epilepsies Part 2

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Curing the Epilepsies Part 1

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Rescue Medications for DEEs Series – Part 4

autonomic

Disfungsi otonom / Dysautonomia

medicine via technology

Nyimpen Telehealth Kita kanggo Keluarga DEE

mom

Rescue Medications for DEEs Series – Part 3

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Rescue Medications for DEEs Series – Part 2

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COVID-19 Vaccines and Epilepsy – Focus on DEE Population

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Rescue Medications for DEEs Series – Part 1

Sibs

Promoting Healthy Relationships between Those with Severe Epilepsy and Their Siblings

epilepsyQI

Ngapikake Kualitas Perawatan ing Epilepsi Bocah Langka

growth

Strategies for Learning at Home with your DEE Child and Engaging the Whole Family

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Navigating Safety for Pediatric Epilepsy Patients in COVID-19 Environment

greif

COVID -19 Through the Lens of Grief

genetics

Genetika saka DEEs

covid19

Nglindhungi Kompleks Medis lan / utawa Bocah-bocah sing Ditekan Kekebalan kanthi Epilepsi saka COVID-19

preparing and planning

IEPs for Children with Severe DEEs

SCN8A Information Resource Center Logo

Ringkesan DEE lan DEE-P