ABC saka Uji Coba Klinis Part 2 - Apa Saben Kulawarga Penyakit Langka Kudu Ngerti

This is a recording of the webinar “The ABC’s of Clinical Trials: Part 2 – What Every Rare Family Should Know,” which was held on October 21st, 2020.

Our Caregiver Voice was:
Mery Oman, mother to a child who has an SCN2A Disorder. She is also a Board member of the FamilieSCN2A Foundation.

Our panelists were:
Steven L. Roberds, PhD – Chief Scientific Officer at the TS Alliance. Steve has a PhD in Pharmacology and significant experience working on clinical trials from both the pharmaceutical and patient advocacy group perspective.

Carolyn McMicken, PhD – Director, Medical Science Liaisons at Neurocrine Biosciences. Carolyn is a neuropsychologist by training with extensive experience in clinical trials and rare epilepsy

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