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  • Resource Center
    • Living With A DEE
      • Care At Home
        • Be Prepared
        • Transition of Care
        • Nursing Care
        • Equipment
        • Telemedicine
        • Dental Health
        • Therapies
        • COVID-19
        • COVID-19 Disruptions
      • Family Health
        • Siblings & Sibling Relationships
        • Caring for the Caregiver
      • Developmental & Epileptic Encephalopathies
      • SUDEP
      • Traveling With Your Medically Complex Child
      • Complex Care and Decision Making
      • Financial Support
      • Medicaid Access
      • Adaptive Technology, Communications
      • Quality Improvement Epilepsy Care
    • Seizure Management
      • Seizure Action Plans
      • Seizures – Rescue Medication
      • Seizures – Tracking And Monitoring
      • Seizures – Infantile Spasms
      • Epilepsy Surgery
      • VNS, DBS, and RNS
      • Off-Label & Repurposed Meds
      • Gene Therapies
      • Alternative Treatments
        • Seizures – CBD
        • Ketogenic Diet
    • Non Seizure Challenges
      • Autism, Related Disorders
      • Autonomic Disorders
      • Behavioral Issues
      • Cardiac Conditions
      • Communication
      • CVI/Vision Issues
      • Endocrine Issues
      • GI Issues
      • Orthopedic Issues
      • Sleep Issues
    • Diagnosis
      • Seizures – Types
      • Genetic Testing
      • Genetic Modifiers and Biomarkers
    • Research
      • Brain Tissue Donation
      • Clinical Trials
      • Curing the Epilepsies
      • The Inchstone Project
      • Managing Your Data
      • Participating In Research
      • Promoting Research
      • Education
    • Financial Support Resource Center
  • Inchstone Project
  • Advocacy
  • About Us
    • Contact
    • DEE-P Core Sponsors
    • Partner With Us
  • DEE-P Blog
  • Dinner on DEE-P

Transition of Care

transitions

Webinars and Videos

Webinars

We haven't yet had a webinar on this but check out these resources from other trusted sources.

Tools And Resources

online tools

Transition of Care - Child Neurology Foundation

Adult Transitions - Dup15q Alliance

Care Notebook - Texas Parent to Parent

Transition From School to Adulthood Planning Guide - Dravet Syndrome Foundation

2021 Transition Webinar Recordings and Presentations - TSC Alliance

FREE COURSE Education Transition for Children with Neurological Conditions  - Pediatric Epilepsy Surgery Alliance

If you have a suggested tool or resource, please contact us.

Articles

Articles

Transition of Care Toolkit - Child Neurology Foundation

Dravet syndrome: A quick transition guide for the adult neurologist - Epilepsy Research Journal

If you have a suggested article, please contact us.

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