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Resources on medical topics are organized around the full range of medical issues associated with rare epilepsies and their wide ranging comorbidities. Most topics are structured around primary medical specialties such as neurology, pulmonology or orthopedics. However, we provide a word search tool which allows users to access resources by searching around key symptoms such as seizures, respiratory failure or DMEs.

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Medical Categories

Autism And Related Disorders

Autonomic Disorders

Brain Surgery

Cardiac Conditions


CVI/Vision Issues

Dental Health


Endocrine Issues

Genetic Testing

GI Issues

Ketogenic Diet

Orthopedic Issues

Quality Improvement Epilepsy Care

Seizures - Cannabinoids/CBD

Seizures - Infantile Spasms

Seizures - Rescue Medication

Seizures - Tracking & Monitoring

Seizures - Types

Sleep Issues

VNS, DBS, RNS – Brain Stimulators

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Brain Donation: What to consider, how it works and how it can help


Why EEGs Matter and What They Can Reveal

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Bone Health for the DEEs

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Protecting Rare Access to Off-Label Treatments

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