This webinar was recorded on May 22nd, 2023.
Have insurance companies or Medicaid refused to cover critical prescribed treatments claiming they were off-label and not “medically necessary”?
Is coverage denied because treatments that may work for you or your child are not on compendia – a compilation of evidence-based, off-label treatment options?
Nearly half of chemotherapy drugs prescribed today are off-label but there is a broad list of drugs that are covered because there was Congressional action. Join forces with other rare disease patients and other families to learn simple ways YOU can encourage Congressional action to make sure insurers and other payers can no longer deny coverage of needed off-label treatments for rare and ultra-rare disorders.
We recognize that your privacy is important. Our privacy statement outlines the types of personal information we receive and collect when you use this website, as well as some of the steps we take to safeguard information. Please read more here.