Tools And Resources
Epilepsy Foundation's SUDEP Institute - to prevent SUDEP and support people bereaved by SUDEP and other epilepsy-related deaths
Danny Did Foundation - resources on devices, prevention of SUDEP and advocacy
Epilepsy Foundation - Information about SUDEP Research
North American SUDEP Registry (NASR) - NASR collects DNA, brain, and other tissues for scientific studies about the causes of SUDEP
Partners Against Mortality in Epilepsy (PAME) - Improving Understanding of and Working to Prevent Epilepsy-related Mortality
Let’s Talk About Sudden Infant Death in Epilepsy - Online Discussion From Child Neurology Foundation
If you have a suggested article, please contact us.