DEE-P Thoughts

Here you will find parent voices sharing their lived experiences as caregivers to their amazing children living with DEEs.

Our CVI Journey

Sep 25, 2024

Anne Thompson Heller shares her daughter’s journey with CVI

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Are we giving sleep enough attention?

Aug 9, 2024

Written By Anne Thompson Heller, mom to 3yr old Jordan who lives with DEEs. How many of our kids experience sleep challenges? From what I gather – many of them!…

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