Video Archives

Cirugía de epilepsia y epilepsias genéticas raras

Are you curious about when and why you should consider epilepsy surgery for your child with a rare genetic epilepsy or DEE? Our guests are: Dr. Ahmad Marashly, Medical Director,…

Dieta cetogénica y las DEE

DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on October 17, 2022. Find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and…

Salud e higiene bucal para quienes no comen por la boca

DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on September 16, 2022. Our guests were: Shannon Daly Weir, a KCNT1 mom and dental hygienist, is working toward her…

Regreso a la escuela SAP

Aug 24th at 1pm ET Back to school time means it’s time to update your child’s seizure action plan (SAP)! Make sure that those who care for your child know…

¿Qué estamos aprendiendo sobre las vacunas COVID-19 y las infecciones en personas con epilepsias raras?

This is a recording of the webinar, “What are we learning about COVID-19 vaccines and infections in those with rare epilepsies?”, which was held on July 21st, 2022. Are you…

Planificación SAP de verano: lo que necesita saber y hacer para estar preparado

“Planificación SAP de verano: lo que necesita saber y hacer para estar preparado” con Dr. Rebecca Garcia-Sosa En Español! Con el verano llegan cambios en la rutina, nuevos cuidadores y nuevos entornos.…

Planificación de medidas para las convulsiones de verano: lo que necesita saber y hacer para estar preparado

Our “Summer Seizure Action Planning – What you need to know and do to be prepared” webinar with pediatric neurologist, Dr. Inna Hughes, was recorded on June 29, 2022. With…

Opciones de alta tecnología para comunicación y acceso alternativos dentro del hogar

“High-tech Options for Alternative Communication and Access within the Home” is the fifth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…

Sistemas de comunicación de baja tecnología o sin tecnología para niños con necesidades de comunicación complejas

“Low-Tech/No-Tech Communication Systems for Children with Complex Communication Needs” is the fourth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends at…

Desentrañando los misterios de la ataxia, la hipertonicidad, la atetosis y el tono mixto

“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…