Posts by Gabi Conecker
Por qué es importante la donación de tejido cerebral
This is the recording of the “Why Brain Tissue Donation Matters” DEE-P webinar which was recorded on June 24, 2022 The loss of any loved one with a rare epilepsy…
Leer másTerapia de atenuación del crecimiento: todo lo que desea y necesita saber
This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…
Leer másOpciones de alta tecnología para comunicación y acceso alternativos dentro del hogar
“High-tech Options for Alternative Communication and Access within the Home” is the fifth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Leer másSistemas de comunicación de baja tecnología o sin tecnología para niños con necesidades de comunicación complejas
“Low-Tech/No-Tech Communication Systems for Children with Complex Communication Needs” is the fourth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends at…
Leer másDesentrañando los misterios de la ataxia, la hipertonicidad, la atetosis y el tono mixto
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Leer másEquipos adaptativos y estrategias de terapia para niños con retrasos graves en el desarrollo
“Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays” is the third in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our…
Leer másUna descripción general de la hipotonía y cómo afecta el funcionamiento y el desarrollo generales
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
Leer másApoyo y atención de cuidados paliativos pediátricos
This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…
Leer másGRABACIÓN – Medidas anticipadas de resultados para las poblaciones gravemente afectadas
Building a Consortium to Advance Outcome Measures for Severely Affected Populations This is a recording of the second workshop, held November 11th 2021, focused on Building a Consortium to Advance…
Leer másGRABACIÓN – EVALUACIÓN DEL ESTADO Y OPORTUNIDADES
ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS This is a recording of day one of the workshop, held November 4th 2021, and was…
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