Gabi Conecker, Author at DEE-P Information Resource Center

Warum die Spende von Hirngewebe wichtig ist

This is the recording of the “Why Brain Tissue Donation Matters” DEE-P webinar which was recorded on June 24, 2022 The loss of any loved one with a rare epilepsy…

Wachstumshemmungstherapie – Alles, was Sie wissen möchten und müssen

This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…

High-tech Options for Alternative Communication and Access within the Home

“High-tech Options for Alternative Communication and Access within the Home” is the fifth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…

Low-Tech/No-Tech-Kommunikationssysteme für Kinder mit komplexen Kommunikationsbedürfnissen

“Low-Tech/No-Tech Communication Systems for Children with Complex Communication Needs” is the fourth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends at…

Die Geheimnisse von Ataxie, Hypertonie, Athetose und Mischtonus entschlüsseln

“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…

Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays

“Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays” is the third in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our…

An Overview of Hypotonia and How it Impacts Overall Functioning and Development

“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…

Pediatric Hospice Support & Care

This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…

AUFZEICHNUNG – Erweiterte Ergebnismessungen für schwer betroffene Bevölkerungsgruppen

Aufbau eines Konsortiums zur Verbesserung der Ergebnismessungen für schwer betroffene Bevölkerungsgruppen Dies ist eine Aufzeichnung des zweiten Workshops vom 11. November 2021, der sich auf den Aufbau eines Konsortiums zur Verbesserung konzentrierte…

ERFASSUNG – BEWERTUNG DES STATUS UND DER CHANCEN

BEWERTUNG DES STATUS UND DER MÖGLICHKEITEN ZUR ENTWICKLUNG VON ERGEBNISMASSNAHMEN FÜR DIE AM SCHWERSTEN BETROFFENEN BEVÖLKERUNGSGRUPPEN Dies ist eine Aufzeichnung des ersten Tages des Workshops, der am 4. November 2021 stattfand und…