Gabi Conecker, Author at DEE-P Information Resource Center

Por qué es importante la donación de tejido cerebral

This is the recording of the “Why Brain Tissue Donation Matters” DEE-P webinar which was recorded on June 24, 2022 The loss of any loved one with a rare epilepsy…

Terapia de atenuación del crecimiento: todo lo que desea y necesita saber

This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…

Opciones de alta tecnología para comunicación y acceso alternativos dentro del hogar

“High-tech Options for Alternative Communication and Access within the Home” is the fifth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…

Sistemas de comunicación de baja tecnología o sin tecnología para niños con necesidades de comunicación complejas

“Low-Tech/No-Tech Communication Systems for Children with Complex Communication Needs” is the fourth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends at…

Desentrañando los misterios de la ataxia, la hipertonicidad, la atetosis y el tono mixto

“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…

Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays

“Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays” is the third in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our…

An Overview of Hypotonia and How it Impacts Overall Functioning and Development

“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…

Apoyo y atención de cuidados paliativos pediátricos

This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…

GRABACIÓN – Medidas anticipadas de resultados para las poblaciones gravemente afectadas

Creación de un consorcio para promover medidas de resultados para las poblaciones gravemente afectadas Esta es una grabación del segundo taller, celebrado el 11 de noviembre de 2021, centrado en la creación de un consorcio para promover...

GRABACIÓN – EVALUACIÓN DEL ESTADO Y OPORTUNIDADES

EVALUACIÓN DEL ESTADO Y OPORTUNIDADES PARA EL DESARROLLO DE MEDIDAS DE RESULTADOS PARA LAS POBLACIONES MÁS AFECTADAS Esta es una grabación del primer día del taller, celebrado el 4 de noviembre de 2021, y fue…