Eventos
Epileptic Spasms DEEP Chat
Are you a caregiver of someone with epileptic spasms (e.g., infantile spasms, West syndrome, infantile epileptic spasms syndrome (IESS), and epileptic spasms that continue or emerge later in childhood)? Join us for a virtual DEEP Chat created specifically for caregivers and families of children with an epileptic spasms diagnosis. This is a welcoming space to…
A Caregiver’s Guide to Seizure Medications
Presented by DEEP in partnership with CDKL5 in Color Seizure medications are one of the most common and important tools used in epilepsy care, yet many families find themselves trying to understand unfamiliar medication names, treatment plans, side effects, and frequent medication changes. Learning how anti-seizure medications work and why they are prescribed can help…
Listening Out Loud: Joyful Communication Beyond Words
Presented by DEEP in partnership with Rare Birds Foundation Communication is about so much more than words. For children living with developmental and epileptic encephalopathies (DEEs) and other conditions that impact speech, meaningful connection happens through many forms of communication. Learning to recognize and respond to these moments can strengthen relationships, build confidence, and create…
