Join us to learn more about Cortical Visual Impairment (CVI) from both caregivers and a teacher of the visually impaired in the rare epilepsies. You'll hear what CVI is, what…

Únase a nosotros para tener la oportunidad de conectarse con la madre y trabajadora social de STXBP1, Amelia Seraphia Derr, y su madre, Susan Bourgerie, psicóloga, quien dirigió nuestra sesión la semana pasada sobre...

Preventing Caregiver Burnout: A Workshop on Building Resilience is brought to you by an amazing mother daughter duo - STXBP1 mom and Social Worker, Amelia Seraphia Derr and her mom, Susan Bourgerie, a psychologist. Their workshop is based on the belief in our innate capacity to adapt, recover, and even thrive despite the effects of…