video Archives

Programas para ayudar a cuidar a nuestros niños complejos: pacientes hospitalizados y ambulatorios

This webinar was recorded on June 7th, 2023. Complex Care programs are primary care for children with complex chronic medical conditions, often with multiple diagnoses and dependent on technology (i.e.…

Protección del acceso poco común a tratamientos no aprobados

This webinar was recorded on May 22nd, 2023. Have insurance companies or Medicaid refused to cover critical prescribed treatments claiming they were off-label and not “medically necessary”? Is coverage denied…

Aprenda cómo maximizar sus datos con el CRID

This webinar was recorded on April 28th, 2023. Watch to learn more about the Clinical Research ID (aka The CRID™), a service that enables patients and parents (and their child/children)…

Problemas gastrointestinales y trastornos del desarrollo neurológico

This webinar was recorded on February 13th, 2023. In this webinar, hear about GI issues such as reflux, feeding tubes, constipation, and more! Speakers: Russ Zwiener, pediatric GI doctor and KdVS…

Dieta cetogénica y las DEE

DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on October 17, 2022. Find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and…

Salud e higiene bucal para quienes no comen por la boca

DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on September 16, 2022. Our guests were: Shannon Daly Weir, a KCNT1 mom and dental hygienist, is working toward her…

Regreso a la escuela SAP

Aug 24th at 1pm ET Back to school time means it’s time to update your child’s seizure action plan (SAP)! Make sure that those who care for your child know…

¿Qué estamos aprendiendo sobre las vacunas COVID-19 y las infecciones en personas con epilepsias raras?

This is a recording of the webinar, “What are we learning about COVID-19 vaccines and infections in those with rare epilepsies?”, which was held on July 21st, 2022. Are you…

Planificación SAP de verano: lo que necesita saber y hacer para estar preparado

“Planificación SAP de verano: lo que necesita saber y hacer para estar preparado” con Dr. Rebecca Garcia-Sosa En Español! Con el verano llegan cambios en la rutina, nuevos cuidadores y nuevos entornos.…

Planificación de medidas para las convulsiones de verano: lo que necesita saber y hacer para estar preparado

Our “Summer Seizure Action Planning – What you need to know and do to be prepared” webinar with pediatric neurologist, Dr. Inna Hughes, was recorded on June 29, 2022. With…