Webinar
GRABACIÓN – Medidas anticipadas de resultados para las poblaciones gravemente afectadas
Building a Consortium to Advance Outcome Measures for Severely Affected Populations This is a recording of the second workshop, held November 11th 2021, focused on Building a Consortium to Advance…
Leer másREGISTRO – EVALUACIÓN DEL ESTADO Y OPORTUNIDADES
ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS This is a recording of day one of the workshop, held November 4th 2021, and was…
Leer más¿Qué puedes hacer TÚ para ayudar a curar las epilepsias?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Leer másTecnología de convulsiones: tecnologías emergentes para predecir y detectar convulsiones
This is the third webinar in the series “Technologies to Help Manage Seizures” and focused on the Future of Seizure Technology. DEE-P co-hosted this series with our partner – Rob…
Leer másTecnología de incautaciones – Seguimiento
This is the first webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure tracking technology. This webinar provides an overview of seizure tracking technology for families, with a…
Leer másTecnología de convulsiones – Monitoreo
This is the second webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure monitoring technology. The Danny Did Foundation joins us to discuss the risks associated with epilepsy,…
Leer más¿Qué tan eficaz es su atención para la epilepsia?
We all want our kids to get the best care possible. But how effective has your child’s epilepsy care been? What can we do to improve outcomes? This conversation—with three…
Leer másSíndrome de epilepsia poco común: ¿ESES, CSWS, EECSWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Leer másEsté preparado: lo guiaremos a través del viaje de planificación para un futuro seguro para su hijo DEE
This introductory webinar shares an overview of the planning necessary for special needs parents to ensure that their children are as comfortable and secure as they (and you!) age. Please…
Leer másConcientización sobre el plan de acción contra las convulsiones
Anyone with seizures should have one… The week of February 8-14, 2021 is the first Seizure Action Plan Awareness Week (SAPAW) to be held annually (starting on the second Monday…
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