Séminaire en ligne
RECORDING – Advance Outcome Measures for Severely Affected Populations
Building a Consortium to Advance Outcome Measures for Severely Affected Populations This is a recording of the second workshop, held November 11th 2021, focused on Building a Consortium to Advance…
Lire la suiteENREGISTREMENT – ÉVALUATION DU STATUT ET DES OPPORTUNITÉS
ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS This is a recording of day one of the workshop, held November 4th 2021, and was…
Lire la suiteQue pouvez-VOUS faire pour aider à guérir les épilepsies ?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Lire la suiteTechnologie des crises – Technologies émergentes pour prédire et détecter les crises
This is the third webinar in the series “Technologies to Help Manage Seizures” and focused on the Future of Seizure Technology. DEE-P co-hosted this series with our partner – Rob…
Lire la suiteTechnologie des saisies – Suivi
This is the first webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure tracking technology. This webinar provides an overview of seizure tracking technology for families, with a…
Lire la suiteTechnologie des saisies – Surveillance
This is the second webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure monitoring technology. The Danny Did Foundation joins us to discuss the risks associated with epilepsy,…
Lire la suiteHow Effective is Your Epilepsy Care?
We all want our kids to get the best care possible. But how effective has your child’s epilepsy care been? What can we do to improve outcomes? This conversation—with three…
Lire la suiteSyndrome d'épilepsie rare : ESES, CSWS, EECSWS ?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Lire la suiteSoyez prêt - Vous guider tout au long du parcours de planification d'un avenir sûr pour votre enfant DEE
This introductory webinar shares an overview of the planning necessary for special needs parents to ensure that their children are as comfortable and secure as they (and you!) age. Please…
Lire la suiteSeizure Action Plan Awareness
Anyone with seizures should have one… The week of February 8-14, 2021 is the first Seizure Action Plan Awareness Week (SAPAW) to be held annually (starting on the second Monday…
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