Séminaire en ligne
Planification SAP de verano : ce qui nécessite de savoir et de faire pour être préparé
“Planificación SAP de verano: lo que necesita saber y hacer para estar preparado” con Dr. Rebecca Garcia-Sosa En Español! Con el verano llegan cambios en la rutina, nuevos cuidadores y nuevos entornos.…
Lire la suiteSummer Seizure Action Planning – What you need to know and do to be prepared
Our “Summer Seizure Action Planning – What you need to know and do to be prepared” webinar with pediatric neurologist, Dr. Inna Hughes, was recorded on June 29, 2022. With…
Lire la suitePourquoi le don de tissus cérébraux est important
This is the recording of the “Why Brain Tissue Donation Matters” DEE-P webinar which was recorded on June 24, 2022 The loss of any loved one with a rare epilepsy…
Lire la suiteThérapie d’atténuation de la croissance – Tout ce que vous voulez et devez savoir
This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…
Lire la suiteOptions de haute technologie pour une communication et un accès alternatifs au sein de la maison
“High-tech Options for Alternative Communication and Access within the Home” is the fifth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Lire la suiteSystèmes de communication low-tech/sans technologie pour les enfants ayant des besoins de communication complexes
“Low-Tech/No-Tech Communication Systems for Children with Complex Communication Needs” is the fourth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends at…
Lire la suitePercer les mystères de l'ataxie, de l'hypertonie, de l'athétose et du ton mixte
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Lire la suiteAdaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays
“Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays” is the third in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our…
Lire la suiteAn Overview of Hypotonia and How it Impacts Overall Functioning and Development
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
Lire la suiteSoutien et soins en soins palliatifs pédiatriques
This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…
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