Posts by Gabi Conecker
¿Qué puedes hacer TÚ para ayudar a curar las epilepsias?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Leer másTecnología de convulsiones: tecnologías emergentes para predecir y detectar convulsiones
This is the third webinar in the series “Technologies to Help Manage Seizures” and focused on the Future of Seizure Technology. DEE-P co-hosted this series with our partner – Rob…
Leer másTecnología de convulsiones: seguimiento
This is the first webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure tracking technology. This webinar provides an overview of seizure tracking technology for families, with a…
Leer másTecnología de convulsiones – Monitoreo
This is the second webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure monitoring technology. The Danny Did Foundation joins us to discuss the risks associated with epilepsy,…
Leer másHow Effective is Your Epilepsy Care?
We all want our kids to get the best care possible. But how effective has your child’s epilepsy care been? What can we do to improve outcomes? This conversation—with three…
Leer másRare Epilepsy Syndrome: ESES, CSWS, EECSWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Leer másBe Prepared – Guiding You Through the Journey of Planning for a Secure Future for your DEE Child
This introductory webinar shares an overview of the planning necessary for special needs parents to ensure that their children are as comfortable and secure as they (and you!) age. Please…
Leer másSeizure Action Plan Awareness
Anyone with seizures should have one… The week of February 8-14, 2021 is the first Seizure Action Plan Awareness Week (SAPAW) to be held annually (starting on the second Monday…
Leer másMuerte súbita inesperada en epilepsia (SUDEP) Parte 3 – Perspectivas familiares
This is the recording of the “SUDEP – Family Perspectives” webinar which was recorded on January 27th, 2021. To wrap up this series, we heard from families directly. The session…
Leer másMuerte Súbita Inesperada en Epilepsia (SUDEP) Parte 2: ¿Qué podemos hacer?
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
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