Posts by Gabi Conecker
Hvað getur ÞÚ gert til að lækna flogaveiki?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Lestu meiraFlogtækni – Ný tækni til að spá fyrir um og greina flog
This is the third webinar in the series “Technologies to Help Manage Seizures” and focused on the Future of Seizure Technology. DEE-P co-hosted this series with our partner – Rob…
Lestu meiraFlogtækni – mælingar
This is the first webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure tracking technology. This webinar provides an overview of seizure tracking technology for families, with a…
Lestu meiraFlogtækni – Vöktun
This is the second webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure monitoring technology. The Danny Did Foundation joins us to discuss the risks associated with epilepsy,…
Lestu meiraHversu áhrifarík er flogaveikihjálp þín?
We all want our kids to get the best care possible. But how effective has your child’s epilepsy care been? What can we do to improve outcomes? This conversation—with three…
Lestu meiraMjög sjaldgæft flogaveikiheilkenni: ESES, CSWS, EECSWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Lestu meiraVertu viðbúinn - Leiðbeindu þér í gegnum ferðalagið til að skipuleggja örugga framtíð fyrir DEE barnið þitt
This introductory webinar shares an overview of the planning necessary for special needs parents to ensure that their children are as comfortable and secure as they (and you!) age. Please…
Lestu meiraMeðvitund um aðgerðaáætlun um krampa
Anyone with seizures should have one… The week of February 8-14, 2021 is the first Seizure Action Plan Awareness Week (SAPAW) to be held annually (starting on the second Monday…
Lestu meiraSkyndilegur óvæntur dauði í flogaveiki (SUDEP) Part 3 – Fjölskyldusjónarmið
This is the recording of the “SUDEP – Family Perspectives” webinar which was recorded on January 27th, 2021. To wrap up this series, we heard from families directly. The session…
Lestu meiraSudden Unexpected Death in Epilepsy (SUDEP) Part 2: Hvað getum við gert?
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
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