Posts de Gabi Conecker
Que pouvez-VOUS faire pour aider à guérir les épilepsies ?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Lire la suiteTechnologie des crises – Technologies émergentes pour prédire et détecter les crises
This is the third webinar in the series “Technologies to Help Manage Seizures” and focused on the Future of Seizure Technology. DEE-P co-hosted this series with our partner – Rob…
Lire la suiteTechnologie des saisies – Suivi
This is the first webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure tracking technology. This webinar provides an overview of seizure tracking technology for families, with a…
Lire la suiteTechnologie des saisies – Surveillance
This is the second webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure monitoring technology. The Danny Did Foundation joins us to discuss the risks associated with epilepsy,…
Lire la suiteHow Effective is Your Epilepsy Care?
We all want our kids to get the best care possible. But how effective has your child’s epilepsy care been? What can we do to improve outcomes? This conversation—with three…
Lire la suiteSyndrome d'épilepsie rare : ESES, CSWS, EECSWS ?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Lire la suiteSoyez prêt - Vous guider tout au long du parcours de planification d'un avenir sûr pour votre enfant DEE
This introductory webinar shares an overview of the planning necessary for special needs parents to ensure that their children are as comfortable and secure as they (and you!) age. Please…
Lire la suiteSeizure Action Plan Awareness
Anyone with seizures should have one… The week of February 8-14, 2021 is the first Seizure Action Plan Awareness Week (SAPAW) to be held annually (starting on the second Monday…
Lire la suiteSudden Unexpected Death in Epilepsy (SUDEP) Part 3 – Family Perspectives
This is the recording of the “SUDEP – Family Perspectives” webinar which was recorded on January 27th, 2021. To wrap up this series, we heard from families directly. The session…
Lire la suiteSudden Unexpected Death in Epilepsy (SUDEP) Part 2: What can we do?
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
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