Posts by Gabi Conecker
تۇتقاقلىق كېسىلىنى داۋالاشقا نېمە قىلالايسىز؟
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
تېخىمۇ كۆپ ئوقۇڭتۇتۇپ قېلىش تېخنىكىسى - تۇتقاقلىقنى ئالدىن پەرەز قىلىش ۋە بايقاشتىكى يېڭىدىن گۈللىنىۋاتقان تېخنىكىلار
This is the third webinar in the series “Technologies to Help Manage Seizures” and focused on the Future of Seizure Technology. DEE-P co-hosted this series with our partner – Rob…
تېخىمۇ كۆپ ئوقۇڭتۇتۇپ قېلىش تېخنىكىسى - ئىز قوغلاش
This is the first webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure tracking technology. This webinar provides an overview of seizure tracking technology for families, with a…
تېخىمۇ كۆپ ئوقۇڭتۇتۇپ قېلىش تېخنىكىسى - نازارەت قىلىش
This is the second webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure monitoring technology. The Danny Did Foundation joins us to discuss the risks associated with epilepsy,…
تېخىمۇ كۆپ ئوقۇڭتۇتقاقلىق پەرۋىشىڭىز قانچىلىك ئۈنۈملۈك؟
We all want our kids to get the best care possible. But how effective has your child’s epilepsy care been? What can we do to improve outcomes? This conversation—with three…
تېخىمۇ كۆپ ئوقۇڭئاز ئۇچرايدىغان تۇتقاقلىق ئۇنىۋېرسال كېسەللىكى: ESES ، CSWS ، EECSWS؟
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
تېخىمۇ كۆپ ئوقۇڭتەييارلىق قىلىڭ - DEE بالىڭىزنىڭ بىخەتەر كەلگۈسىنى پىلانلاش ساياھىتى ئارقىلىق سىزنى يېتەكلەڭ
This introductory webinar shares an overview of the planning necessary for special needs parents to ensure that their children are as comfortable and secure as they (and you!) age. Please…
تېخىمۇ كۆپ ئوقۇڭتۇتۇپ قېلىش ھەرىكەت پىلانى ئېڭى
Anyone with seizures should have one… The week of February 8-14, 2021 is the first Seizure Action Plan Awareness Week (SAPAW) to be held annually (starting on the second Monday…
تېخىمۇ كۆپ ئوقۇڭتۇتقاقلىق كېسىلى (SUDEP) تۇيۇقسىز كۈتۈلمىگەن ئۆلۈم 3-قىسىم - ئائىلە قارىشى
This is the recording of the “SUDEP – Family Perspectives” webinar which was recorded on January 27th, 2021. To wrap up this series, we heard from families directly. The session…
تېخىمۇ كۆپ ئوقۇڭتۇتقاقلىق كېسىلى (SUDEP) تۇيۇقسىز كۈتۈلمىگەن ئۆلۈم 2-قىسىم: بىز نېمە قىلالايمىز؟
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
تېخىمۇ كۆپ ئوقۇڭ