Video
Équipement adaptatif et stratégies thérapeutiques pour les enfants présentant de graves retards de développement
“Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays” is the third in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our…
Lire la suiteUn aperçu de l'hypotonie et de son impact sur le fonctionnement et le développement globaux
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
Lire la suiteSoutien et soins en soins palliatifs pédiatriques
This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…
Lire la suiteENREGISTREMENT – Mesures de résultats avancées pour les populations gravement touchées
Building a Consortium to Advance Outcome Measures for Severely Affected Populations This is a recording of the second workshop, held November 11th 2021, focused on Building a Consortium to Advance…
Lire la suiteENREGISTREMENT – ÉVALUATION DU STATUT ET DES OPPORTUNITÉS
ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS This is a recording of day one of the workshop, held November 4th 2021, and was…
Lire la suiteQue pouvez-VOUS faire pour aider à guérir les épilepsies ?
This is a recording of webinar which was held on October 20, 2021. This special session brought together the leaders from government, clinician-researchers, and advocates who devoted two years to…
Lire la suiteTechnologie des crises – Technologies émergentes pour prédire et détecter les crises
This is the third webinar in the series “Technologies to Help Manage Seizures” and focused on the Future of Seizure Technology. DEE-P co-hosted this series with our partner – Rob…
Lire la suiteTechnologie des saisies – Suivi
This is the first webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure tracking technology. This webinar provides an overview of seizure tracking technology for families, with a…
Lire la suiteTechnologie des saisies – Surveillance
This is the second webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure monitoring technology. The Danny Did Foundation joins us to discuss the risks associated with epilepsy,…
Lire la suiteQuelle est l’efficacité de vos soins contre l’épilepsie ?
We all want our kids to get the best care possible. But how effective has your child’s epilepsy care been? What can we do to improve outcomes? This conversation—with three…
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