Catatan Ditandakan 'video'
Mengapa Pendermaan Tisu Otak Penting
This is the recording of the “Why Brain Tissue Donation Matters” DEE-P webinar which was recorded on June 24, 2022 The loss of any loved one with a rare epilepsy…
Baca LagiTerapi Pelemahan Pertumbuhan – Semua yang Anda Mahu dan Perlu Tahu
This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…
Baca LagiPilihan Berteknologi Tinggi untuk Komunikasi Alternatif dan Akses dalam Rumah
“High-tech Options for Alternative Communication and Access within the Home” is the fifth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Baca LagiSistem Komunikasi Berteknologi Rendah/Tiada Berteknologi untuk Kanak-kanak dengan Keperluan Komunikasi yang Kompleks
“Low-Tech/No-Tech Communication Systems for Children with Complex Communication Needs” is the fourth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends at…
Baca LagiMembongkar Misteri Ataxia, Hipertonisitas, Athetosis dan Nada Campuran
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
Baca LagiPeralatan Adaptif dan Strategi Terapi untuk Kanak-Kanak Kelewatan Perkembangan Yang Teruk
“Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays” is the third in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our…
Baca LagiGambaran Keseluruhan Hipotonia dan Bagaimana Ia Mempengaruhi Fungsi dan Perkembangan Keseluruhan
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
Baca LagiSokongan & Penjagaan Hospis Pediatrik
This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…
Baca LagiPEREKODAN – Langkah-langkah Keberhasilan Terdahulu untuk Penduduk Yang Teruk Terjejas
Building a Consortium to Advance Outcome Measures for Severely Affected Populations This is a recording of the second workshop, held November 11th 2021, focused on Building a Consortium to Advance…
Baca LagiMERAKAM – MENILAI STATUS DAN PELUANG
ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS This is a recording of day one of the workshop, held November 4th 2021, and was…
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