Posts Tagged ‘video’
為什麼腦組織捐贈很重要
This is the recording of the “Why Brain Tissue Donation Matters” DEE-P webinar which was recorded on June 24, 2022 The loss of any loved one with a rare epilepsy…
閱讀更多生長抑制療法—您想要和需要知道的一切
This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…
閱讀更多家庭內替代通訊和存取的高科技選項
“High-tech Options for Alternative Communication and Access within the Home” is the fifth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
閱讀更多適用於具有複雜溝通需求的兒童的低技術/無技術通訊系統
“Low-Tech/No-Tech Communication Systems for Children with Complex Communication Needs” is the fourth in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends at…
閱讀更多揭開共濟失調、肌張力過高、手足徐動症和混合音的奧秘
“Unraveling the Mysteries of Ataxia, Hypertonicity, Athetosis and Mixed Tone” is the second in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our friends…
閱讀更多針對嚴重發育遲緩兒童的適應性設備和治療策略
“Adaptive Equipment and Therapy Strategies for Children with Severe Developmental Delays” is the third in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with our…
閱讀更多肌張力減退及其如何影響整體功能和發育的概述
“An Overview of Hypotonia and How it Impacts overall Functioning and Development” is the first in our 6-part series on Optimizing Therapies for those Living with DEEs in partnership with…
閱讀更多兒科臨終關懷支持與護理
This is a recording of the webinar “Complex Continual Care for those with living DEEs and their families,” which was held on November 30th, 2021. Pediatric hospice support is not…
閱讀更多記錄－針對嚴重受影響人口的預先結果措施
Building a Consortium to Advance Outcome Measures for Severely Affected Populations This is a recording of the second workshop, held November 11th 2021, focused on Building a Consortium to Advance…
閱讀更多記錄－評估現況和機會
ASSESSING STATUS AND OPPORTUNITIES FOR DEVELOPING OUTCOME MEASURES FOR THE MOST SEVERELY AFFECTED POPULATIONS This is a recording of day one of the workshop, held November 4th 2021, and was…
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