Medical
تۇتقاقلىق كېسىلى (SUDEP) تۇيۇقسىز كۈتۈلمىگەن ئۆلۈم 3-قىسىم - ئائىلە قارىشى
This is the recording of the “SUDEP – Family Perspectives” webinar which was recorded on January 27th, 2021. To wrap up this series, we heard from families directly. The session…
تېخىمۇ كۆپ ئوقۇڭتۇتقاقلىق كېسىلى (SUDEP) تۇيۇقسىز كۈتۈلمىگەن ئۆلۈم 2-قىسىم: بىز نېمە قىلالايمىز؟
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
تېخىمۇ كۆپ ئوقۇڭنېرۋا غىدىقلىغۇچى- VNS ، DBS ياكى RNS ياردەم قىلالامدۇ؟
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
تېخىمۇ كۆپ ئوقۇڭتۇتقاقلىق كېسىلى (SUDEP) تۇيۇقسىز كۈتۈلمىگەن ئۆلۈم 1-قىسىم: بىز نېمىنى بىلىمىز؟
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
تېخىمۇ كۆپ ئوقۇڭDEEs يۈرۈشلۈك قۇتقۇزۇش قۇتقۇزۇش دورىلىرى - 4-قىسىم
This webinar was originally broadcast live on August 12, 2020 and featured a review of the first 3 webinars in the Rescue Medications for DEEs series and a panel of…
تېخىمۇ كۆپ ئوقۇڭئاپتونومىيە ئىقتىدارى ئاجىزلاش / Dysautonomia
Does your child suffer from digestive and/or urinary motility problems? Do they suffer from temperature regulation issues? Do they have irregular blood pressure and/or heart rate? When you have ruled…
تېخىمۇ كۆپ ئوقۇڭDEEs يۈرۈشلۈك قۇتقۇزۇش قۇتقۇزۇش دورىلىرى - 3-قىسىم
This webinar was originally broadcast live on July 22, 2020 and featured a panel of caregivers sharing their experiences utilizing rescue medications for DEEs. This third webinar of the Rescue…
تېخىمۇ كۆپ ئوقۇڭDEEs يۈرۈشلۈك قۇتقۇزۇش قۇتقۇزۇش دورىلىرى - 2-قىسىم
This webinar, which was originally broadcast live on July 8, 2020, gave a synopsis of recent in-depth interviews with DEE caregivers about their experiences utilizing rescue medications for DEEs and…
تېخىمۇ كۆپ ئوقۇڭCOVID-19 ۋاكسىنىسى ۋە تۇتقاقلىق كېسىلى - DEE نوپۇسىغا دىققەت قىلىڭ
In conjunction with NIH and our partners at the PCDH19 Alliance, we held this webinar to update DEE families on COVID-19 vaccines and epilepsy. This included updates on the development…
تېخىمۇ كۆپ ئوقۇڭDEEs يۈرۈشلۈك قۇتقۇزۇش قۇتقۇزۇش دورىلىرى - 1-قىسىم
This webinar was originally broadcast live on June 12, 2020. We heard from a caregiver about her experience navigating and using rescue medications for DEEs and from two leading professionals…
تېخىمۇ كۆپ ئوقۇڭ