醫療的
癲癇意外猝死 (SUDEP) 第 3 部分 – 家庭觀點
This is the recording of the “SUDEP – Family Perspectives” webinar which was recorded on January 27th, 2021. To wrap up this series, we heard from families directly. The session…
閱讀更多癲癇意外猝死 (SUDEP) 第 2 部分：我們能做什麼？
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
閱讀更多神經刺激器 - VNS、DBS 或 RNS 有幫助嗎？
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
閱讀更多癲癇意外猝死 (SUDEP) 第 1 部分：我們知道什麼？
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
閱讀更多Rescue Medications for DEEs Series – Part 4
This webinar was originally broadcast live on August 12, 2020 and featured a review of the first 3 webinars in the Rescue Medications for DEEs series and a panel of…
閱讀更多自主神經功能障礙/自主神經功能障礙
Does your child suffer from digestive and/or urinary motility problems? Do they suffer from temperature regulation issues? Do they have irregular blood pressure and/or heart rate? When you have ruled…
閱讀更多Rescue Medications for DEEs Series – Part 3
This webinar was originally broadcast live on July 22, 2020 and featured a panel of caregivers sharing their experiences utilizing rescue medications for DEEs. This third webinar of the Rescue…
閱讀更多Rescue Medications for DEEs Series – Part 2
This webinar, which was originally broadcast live on July 8, 2020, gave a synopsis of recent in-depth interviews with DEE caregivers about their experiences utilizing rescue medications for DEEs and…
閱讀更多COVID-19 疫苗和癲癇 – 關注 DEE 人群
In conjunction with NIH and our partners at the PCDH19 Alliance, we held this webinar to update DEE families on COVID-19 vaccines and epilepsy. This included updates on the development…
閱讀更多Rescue Medications for DEEs Series – Part 1
This webinar was originally broadcast live on June 12, 2020. We heard from a caregiver about her experience navigating and using rescue medications for DEEs and from two leading professionals…
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