醫療的
提高罕見兒童癲癇的護理品質
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
閱讀更多COVID-19 環境下小兒癲癇患者的安全保障
This webinar—planned in coordination with The Epilepsy Foundation of America—shared front-line experiences and updates on COVID-19 in severe pediatric epilepsy patients from three Boston Children’s Hospital Division of Epilepsy &…
閱讀更多DEE 的遺傳學
This webinar was planned in coordination with Invitae and Children’s Hospital Colorado. The webinar was originally held on April 29, 2020. This webinar on the genetics of DEEs includes information…
閱讀更多保護病情複雜和/或免疫抑制的癲癇兒童免受 COVID-19 的侵害
This session was moderated by Heidi Grabenstatter – Science Director for IFCR and the panelists for this webinar were: Dr. Anastassios Koumbourlis – Division Chief, Pulmonary & Sleep Medicine &…
閱讀更多DEE 和 DEE-P 概述
This webinar provides an overview of developmental and epileptic encephalopathies (DEEs) and background on the DEE-Project – our mission, activities and partners. Our guest was Tracy Dixon-Salazar, PhD – Director…
閱讀更多