This webinar—planned in coordination with The Epilepsy Foundation of America—shared front-line experiences and updates on COVID-19 in severe pediatric epilepsy patients from three Boston Children’s Hospital Division of Epilepsy & Clinical Neurophysiology staff and two DEE parent advocates.

This webinar was moderated by Gabrielle Conecker of Wishes for Elliott and the panelists were:

Colleen Gagnon RN, BSN – Clinical Coordinator and Rare Mom

Chris Ryan, MSW, LCSW – Clinical Social Worker

Cheryl Cahill, RN, MSN, CNRN – Epilepsy Surgical Coordinator and Rare Mom

Family Voices of DEE caregivers included:

凱倫·厄特利, Mom to Samantha and President, International Foundation for CDKL5 Research &

Yssa DeWoody PhD, Mom to Marie and President, Ring14 USA

This is a recording of the DEE-P Connections webinar broadcast on April 23, 2020

請注意，自本次網路研討會舉辦以來，有關 COVID-19（冠狀病毒）的最新資訊可能已發生變化.
請拜訪 www.cdc.gov/coronavirus 了解最新資訊。

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