Navigating Safety for Pediatric Epilepsy Patients in COVID-19 Environment

This webinar—planned in coordination with The Epilepsy Foundation of America—shared front-line experiences and updates on COVID-19 in severe pediatric epilepsy patients from three Boston Children’s Hospital Division of Epilepsy & Clinical Neurophysiology staff and two DEE parent advocates.

This webinar was moderated by Gabrielle Conecker of Wishes for Elliott and the panelists were:

Colleen Gagnon RN, BSN – Clinical Coordinator and Rare Mom

Chris Ryan, MSW, LCSW – Clinical Social Worker

Cheryl Cahill, RN, MSN, CNRN – Epilepsy Surgical Coordinator and Rare Mom

Family Voices of DEE caregivers included:

Karen Utley, Mom to Samantha and President, International Foundation for CDKL5 Research &

Yssa DeWoody PhD, Mom to Marie and President, Ring14 USA

This is a recording of the DEE-P Connections webinar broadcast on April 23, 2020

Please note that the most up-to-date information on COVID-19 (Coronavirus) may have changed since this webinar took place.
Please visit www.cdc.gov/coronavirus for the latest information.

For more DEE resources, check out our resource center

Privacy Statement

We recognize that your privacy is important. Our privacy statement outlines the types of personal information we receive and collect when you use this website, as well as some of the steps we take to safeguard information. Please read more here.