This webinar—planned in coordination with The Epilepsy Foundation of America—shared front-line experiences and updates on COVID-19 in severe pediatric epilepsy patients from three Boston Children’s Hospital Division of Epilepsy & Clinical Neurophysiology staff and two DEE parent advocates.

This webinar was moderated by Gabrielle Conecker of Wishes for Elliott and the panelists were:

Colleen Gagnon RN, BSN – Clinical Coordinator and Rare Mom

Chris Ryan, MSW, LCSW – Clinical Social Worker

Cheryl Cahill, RN, MSN, CNRN – Epilepsy Surgical Coordinator and Rare Mom

Family Voices of DEE caregivers included:

Karen Utleyová, Mom to Samantha and President, International Foundation for CDKL5 Research &

Yssa DeWoody PhD, Mom to Marie and President, Ring14 USA

This is a recording of the DEE-P Connections webinar broadcast on April 23, 2020

Please note that the most up-to-date information on COVID-19 (Coronavirus) may have changed since this webinar took place.
Please visit www.cdc.gov/coronavirus for the latest information.

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