Læknisfræðilegt
Að bæta gæði umönnunar við sjaldgæfa flogaveiki barna
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
Lestu meiraSiglingaöryggi fyrir flogaveikisjúklinga hjá börnum í COVID-19 umhverfi
This webinar—planned in coordination with The Epilepsy Foundation of America—shared front-line experiences and updates on COVID-19 in severe pediatric epilepsy patients from three Boston Children’s Hospital Division of Epilepsy &…
Lestu meiraErfðafræði DEEs
This webinar was planned in coordination with Invitae and Children’s Hospital Colorado. The webinar was originally held on April 29, 2020. This webinar on the genetics of DEEs includes information…
Lestu meiraAð vernda læknisfræðilega flókin og/eða ónæmisbæld börn með flogaveiki gegn COVID-19
This session was moderated by Heidi Grabenstatter – Science Director for IFCR and the panelists for this webinar were: Dr. Anastassios Koumbourlis – Division Chief, Pulmonary & Sleep Medicine &…
Lestu meiraYfirlit yfir DEE og DEE-P
This webinar provides an overview of developmental and epileptic encephalopathies (DEEs) and background on the DEE-Project – our mission, activities and partners. Our guest was Tracy Dixon-Salazar, PhD – Director…
Lestu meira