Médical
Améliorer la qualité des soins dans l'épilepsie infantile rare
This quality of care webinar was moderated by Gabrielle Conecker, mother to Elliott who has SCN8A-related epilepsy and severe DEE, and is Co-Founder of Wishes for Elliott and DEE-P Connections.…
Lire la suiteNavigating Safety for Pediatric Epilepsy Patients in COVID-19 Environment
This webinar—planned in coordination with The Epilepsy Foundation of America—shared front-line experiences and updates on COVID-19 in severe pediatric epilepsy patients from three Boston Children’s Hospital Division of Epilepsy &…
Lire la suiteGénétique des DEE
This webinar was planned in coordination with Invitae and Children’s Hospital Colorado. The webinar was originally held on April 29, 2020. This webinar on the genetics of DEEs includes information…
Lire la suiteProtéger les enfants épileptiques médicalement complexes et/ou immunodéprimés contre le COVID-19
This session was moderated by Heidi Grabenstatter – Science Director for IFCR and the panelists for this webinar were: Dr. Anastassios Koumbourlis – Division Chief, Pulmonary & Sleep Medicine &…
Lire la suitePrésentation des DEE et DEE-P
This webinar provides an overview of developmental and epileptic encephalopathies (DEEs) and background on the DEE-Project – our mission, activities and partners. Our guest was Tracy Dixon-Salazar, PhD – Director…
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