Médical
Mort subite et inattendue due à l'épilepsie (SUDEP) Partie 3 – Perspectives familiales
This is the recording of the “SUDEP – Family Perspectives” webinar which was recorded on January 27th, 2021. To wrap up this series, we heard from families directly. The session…
Lire la suiteMort subite et inattendue due à l'épilepsie (SUDEP) Partie 2 : Que pouvons-nous faire ?
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
Lire la suiteStimulateurs nerveux – Un VNS, DBS ou RNS pourrait-il aider ?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
Lire la suiteMort subite et inattendue due à l'épilepsie (SUDEP) Partie 1 : Que savons-nous ?
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
Lire la suiteSérie Médicaments de secours pour les DEE – Partie 4
This webinar was originally broadcast live on August 12, 2020 and featured a review of the first 3 webinars in the Rescue Medications for DEEs series and a panel of…
Lire la suiteDysfonctionnement autonome/dysautonomie
Does your child suffer from digestive and/or urinary motility problems? Do they suffer from temperature regulation issues? Do they have irregular blood pressure and/or heart rate? When you have ruled…
Lire la suiteSérie Médicaments de secours pour les DEE – Partie 3
This webinar was originally broadcast live on July 22, 2020 and featured a panel of caregivers sharing their experiences utilizing rescue medications for DEEs. This third webinar of the Rescue…
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This webinar, which was originally broadcast live on July 8, 2020, gave a synopsis of recent in-depth interviews with DEE caregivers about their experiences utilizing rescue medications for DEEs and…
Lire la suiteVaccins contre la COVID-19 et épilepsie – Focus sur la population DEE
In conjunction with NIH and our partners at the PCDH19 Alliance, we held this webinar to update DEE families on COVID-19 vaccines and epilepsy. This included updates on the development…
Lire la suiteSérie Médicaments de secours pour les DEE – Partie 1
This webinar was originally broadcast live on June 12, 2020. We heard from a caregiver about her experience navigating and using rescue medications for DEEs and from two leading professionals…
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