Medical
Sudden Unexpected Death in Epilepsy (SUDEP) Part 3 – Family Perspectives
This is the recording of the “SUDEP – Family Perspectives” webinar which was recorded on January 27th, 2021. To wrap up this series, we heard from families directly. The session…
Read MoreSudden Unexpected Death in Epilepsy (SUDEP) Part 2: What can we do?
There are a number of efforts underway to improve communication about and prevention of SUDEP. This webinar explores how some advocates are working to improve communication with families about SUDEP…
Read MoreNerve Stimulators- Could a VNS, DBS, or RNS Help?
Have you wondered whether vagus nerve stimulators (VNS) might help reduce the intensity of your child’s seizures? What about a responsive neurostimulator (RNS)? Deep brain stimulator (DBS)? This webinar shares…
Read MoreSudden Unexpected Death in Epilepsy (SUDEP) Part 1: What do we know?
What do we know about SUDEP? What don’t we know? What is the state of the research? This webinar helps answer those questions, and more, with three experts: Sally Schaeffer…
Read MoreRescue Medications for DEEs Series – Part 4
This webinar was originally broadcast live on August 12, 2020 and featured a review of the first 3 webinars in the Rescue Medications for DEEs series and a panel of…
Read MoreAutonomic Dysfunction/Dysautonomia
Does your child suffer from digestive and/or urinary motility problems? Do they suffer from temperature regulation issues? Do they have irregular blood pressure and/or heart rate? When you have ruled…
Read MoreRescue Medications for DEEs Series – Part 3
This webinar was originally broadcast live on July 22, 2020 and featured a panel of caregivers sharing their experiences utilizing rescue medications for DEEs. This third webinar of the Rescue…
Read MoreRescue Medications for DEEs Series – Part 2
This webinar, which was originally broadcast live on July 8, 2020, gave a synopsis of recent in-depth interviews with DEE caregivers about their experiences utilizing rescue medications for DEEs and…
Read MoreCOVID-19 Vaccines and Epilepsy – Focus on DEE Population
In conjunction with NIH and our partners at the PCDH19 Alliance, we held this webinar to update DEE families on COVID-19 vaccines and epilepsy. This included updates on the development…
Read MoreRescue Medications for DEEs Series – Part 1
This webinar was originally broadcast live on June 12, 2020. We heard from a caregiver about her experience navigating and using rescue medications for DEEs and from two leading professionals…
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