COVID-19 Vaccines and Epilepsy – Focus on DEE Population

In conjunction with NIH and our partners at the PCDH19 Alliance, we held this webinar to update DEE families on COVID-19 vaccines and epilepsy. This included updates on the development of vaccines and treatments for COVID-19 and an explanation of how COVID-19 impacts the nervous system, with special consideration for those with developmental and epileptic encephalopathies (DEEs).

Our guests were: Jennifer Holland, a school psychologist and mom to Sloan, who has PCDH19 Epilepsy, who shared her experiences with rescue meds.

Dr. Adam Hartman – the Moderator of this session who is a Program Director at NIH/NINDS and practicing pediatric neurologist.

Dr. Jim Campbell, Associate Professor at University of Maryland School of Medicine – Pediatric Infectious Disease Specialist active in global vaccine research.

Dr. Avindra Nath, is a physician-scientist who specializes in neuroimmunology and is the Intramural Clinical Director of the National Institute of Neurological Disorders and Stroke at the National Institutes of Health.

This is a recording of the webinar, “Updates on COVID-19 vaccine development with special consideration for the DEE population”, which was held on June 17th, 2020.

Please note that the most up-to-date information on COVID-19 (Coronavirus) may have changed since this webinar took place.
Please visit for the latest information.

For more DEE resources, check out our resource center

Privacy Statement

We recognize that your privacy is important. Our privacy statement outlines the types of personal information we receive and collect when you use this website, as well as some of the steps we take to safeguard information. Please read more here.