Medical
What are we learning about COVID-19 vaccines and infections in those with rare epilepsies?
This is a recording of the webinar, “What are we learning about COVID-19 vaccines and infections in those with rare epilepsies?”, which was held on July 21st, 2022. Are you…
Read MorePlanificación SAP de verano: lo que necesita saber y hacer para estar preparado
“Planificación SAP de verano: lo que necesita saber y hacer para estar preparado” con Dr. Rebecca Garcia-Sosa En Español! Con el verano llegan cambios en la rutina, nuevos cuidadores y nuevos entornos.…
Read MoreSummer Seizure Action Planning – What you need to know and do to be prepared
Our “Summer Seizure Action Planning – What you need to know and do to be prepared” webinar with pediatric neurologist, Dr. Inna Hughes, was recorded on June 29, 2022. With…
Read MoreWhy Brain Tissue Donation Matters
This is the recording of the “Why Brain Tissue Donation Matters” DEE-P webinar which was recorded on June 24, 2022 The loss of any loved one with a rare epilepsy…
Read MoreGrowth Attenuation Therapy – Everything You Want and Need to Know
This is the recording of the DEE-P webinar which was recorded on May 18, 2022 In this incredible webinar, you will learn about growth attenuation from the caregiver, clinical, ethical,…
Read MoreSeizure Technology – Emerging Technologies to Predict and Detect Seizures
This is the third webinar in the series “Technologies to Help Manage Seizures” and focused on the Future of Seizure Technology. DEE-P co-hosted this series with our partner – Rob…
Read MoreSeizure Technology – Tracking
This is the first webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure tracking technology. This webinar provides an overview of seizure tracking technology for families, with a…
Read MoreSeizure Technology – Monitoring
This is the second webinar in the series “Technologies to Help Manage Seizures”, highlighting seizure monitoring technology. The Danny Did Foundation joins us to discuss the risks associated with epilepsy,…
Read MoreRare Epilepsy Syndrome: ESES, CSWS, EECSWS?
This webinar was broadcast live on June 10, 2021. Rare within rare – ESES Electrical status epilepticus during slow-wave sleep (ESES), also known as continuous spike-wave of slow sleep (CSWS)…
Read MoreSeizure Action Plan Awareness
Anyone with seizures should have one… The week of February 8-14, 2021 is the first Seizure Action Plan Awareness Week (SAPAW) to be held annually (starting on the second Monday…
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