Medical
Why EEGs Matter and What They Can Reveal
This is the recording of the DEE-P webinar which was recorded on October 12, 2023. Have you ever wondered about is there was more we could learn from the EEG…
Read MoreBone Health for the DEEs
This is the recording of the DEE-P webinar which was recorded on August 5, 2023. We are still learning but both epilepsy and anti-seizure medications (ASMs) are associated with adverse…
Read MoreProtecting Rare Access to Off-Label Treatments
This webinar was recorded on May 22nd, 2023. Have insurance companies or Medicaid refused to cover critical prescribed treatments claiming they were off-label and not “medically necessary”? Is coverage denied…
Read MoreLearn How To Maximize Your Data with The CRID
This webinar was recorded on April 28th, 2023. Watch to learn more about the Clinical Research ID (aka The CRID™), a service that enables patients and parents (and their child/children)…
Read MoreGI Issues and Neurodevelopmental Disorders
This webinar was recorded on February 13th, 2023. In this webinar, hear about GI issues such as reflux, feeding tubes, constipation, and more! Speakers: Russ Zwiener, pediatric GI doctor and KdVS…
Read MoreEpilepsy Surgery and Rare Genetic Epilepsies
Are you curious about when and why you should consider epilepsy surgery for your child with a rare genetic epilepsy or DEE? Our guests are: Dr. Ahmad Marashly, Medical Director,…
Read MoreKetogenic Diet and the DEEs
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on October 17, 2022. Find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and…
Read MoreOral Health and Hygiene for Those Who Do Not Eat by Mouth
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on September 16, 2022. Our guests were: Shannon Daly Weir, a KCNT1 mom and dental hygienist, is working toward her…
Read MoreBack To School SAP
Aug 24th at 1pm ET Back to school time means it’s time to update your child’s seizure action plan (SAP)! Make sure that those who care for your child know…
Read MoreWhat are we learning about COVID-19 vaccines and infections in those with rare epilepsies?
This is a recording of the webinar, “What are we learning about COVID-19 vaccines and infections in those with rare epilepsies?”, which was held on July 21st, 2022. Are you…
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