Perubatan
Derma Otak: Perkara yang perlu dipertimbangkan, cara ia berfungsi dan cara ia boleh membantu
Dalam perbincangan penting ini dengan ibu-ibu epilepsi jarang yang membuat keputusan untuk mendermakan tisu otak anak-anak mereka apabila meninggal dunia, kami membincangkan beberapa elemen kritikal tentang perkara ini secara mendalam…
Baca LagiMengapa EEG Penting dan Perkara yang Boleh Didedahkan
Ini adalah rakaman webinar DEE-P yang dirakam pada 12 Oktober 2023. Pernahkah anda terfikir adakah lebih banyak lagi yang boleh kita pelajari daripada EEG…
Baca LagiKesihatan Tulang untuk DEE
Ini adalah rakaman webinar DEE-P yang dirakam pada 5 Ogos 2023. Kami masih belajar tetapi kedua-dua ubat epilepsi dan anti-sawan (ASM) dikaitkan dengan…
Baca LagiMelindungi Akses Jarang kepada Rawatan Luar Label
This webinar was recorded on May 22nd, 2023. Have insurance companies or Medicaid refused to cover critical prescribed treatments claiming they were off-label and not “medically necessary”? Is coverage denied…
Baca LagiKetahui Cara Memaksimumkan Data Anda dengan CRID
This webinar was recorded on April 28th, 2023. Watch to learn more about the Clinical Research ID (aka The CRID™), a service that enables patients and parents (and their child/children)…
Baca LagiIsu GI dan Gangguan Neurodevelopmental
This webinar was recorded on February 13th, 2023. In this webinar, hear about GI issues such as reflux, feeding tubes, constipation, and more! Speakers: Russ Zwiener, pediatric GI doctor and KdVS…
Baca LagiPembedahan Epilepsi dan Epilepsi Genetik Jarang
Are you curious about when and why you should consider epilepsy surgery for your child with a rare genetic epilepsy or DEE? Our guests are: Dr. Ahmad Marashly, Medical Director,…
Baca LagiDiet Ketogenik dan DEE
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on October 17, 2022. Find out how the ketogenic diet works with the DEEs from Ketogenic Diet Program Director and…
Baca LagiKesihatan dan Kebersihan Mulut bagi Mereka yang Tidak Makan melalui Mulut
DEE-P co-hosted this in partnership with the KCNT1 Epilepsy Foundation on September 16, 2022. Our guests were: Shannon Daly Weir, a KCNT1 mom and dental hygienist, is working toward her…
Baca LagiKembali Ke Sekolah SAP
Aug 24th at 1pm ET Back to school time means it’s time to update your child’s seizure action plan (SAP)! Make sure that those who care for your child know…
Baca Lagi