了解如何使用 CRID 最大化您的數據
4 月 28, 2023 @ 下午 12:00
Join us for this 30 min webinar to learn more about the Clinical Research ID (aka The CRID™), a service that enables patients and parents (and their child/children) involved in clinical research studies the opportunity to create their own unique universal patient identifier to be used in clinical research. This CRID identifier can be used across multiple clinical research studies. It will allow researchers to share your clinical data (not PII/PHI) with other research studies you are involved in. The main benefit is that more of your research data can be shared between researchers and data silos can be eliminated.
您將聽到 CRID 開發人員 Gerry Nesbitt 的發言，他是一位專門從事學術臨床研究 IT 的資訊學創新者。他曾擔任加州大學舊金山分校資訊學主任。他負責癲癇表型組/基因組項目的 IT 工作，該項目是 NIH 資助的 $15M/5 年項目，也是有史以來規模最大的癲癇和癲癇發作流行病學和基因組研究。
了解更多： https://thecrid.org/
